It is not putting too fine a point on it to say that, while MS has distinct traces and patterns, each person?s multiple sclerosis is unique unto them. The way MS touches you, the manner in which you respond (or don?t) to medications, your mental outlook on life, the list could go on? All of these are yours and yours alone.
Were someone else to look at the way you ?work? your disease, they might find it 180? from the way they take care of themselves. You might read someone?s comment here and bite your tongue (or don?t) at the way they have decided to live their life with this disease. The point is, it is your life, it is your decision and if there be consequences they are yours with which to contend.
In general I believe that the overwhelming majority of our blog community members see life with MS that way. I also think that many in our community strive to help one another when it comes to things that may or may not have worked for them in the past. I hope that you?ll take what I?m about to say in the vein in which it is offered.
The way you treat your MS is Crazy (and the way I treat mine is crazy too)!
We either take a drug that we think is working (because nothing bad is happening) or we ignore scientific evidence and we decide not to take those same drugs.
We reject or accept ideas, concepts, and treatments for the most diverse of reasons and then do the exact opposite for the very next one in line.
We trick ourselves into believing some things and we try not to believe others.
We allow people close to us to do more damage to us than the disease on some days and we push away those who try to help.
We judge a medication as much for its side-effects as for intended effect.
We comfort ourselves (sometimes) in that fact that it could be worse and we pray like hell that they don?t worsen.
We find ourselves reaching out to one another here in the Life With MS Blog - to people we?ll never meet - and have conversations more intimate than with our spouses, partners, family or doctors.
We don?t ?give in? to using an assistive device because it would mean reliance when that very device could allow us to no longer rely on a number of other things.
We lay awake at night, burdened by the weight of total exhaustion.
We laugh at our symptoms when others cry and we cry for no apparent reason at all.
We stick ourselves with needles when a fear of sharp objects once paralyzed us.
You are a crazy bunch of people; you people living with multiple sclerosis. I sure am glad that you?re out there? I?d hate to have to face the today and tomorrow and the next day with MS as the only crazy bastard in my life!
Well done to you. Well done to all of us! Let us all remember, the next time we?re giving advice on how someone ?should? or what someone ?must? or that someone ?might? that we?re each just a little bit crazy and the person on the other side is too. It makes everything so much easier.
Wishing you and your family the best of health.
Cheers
Trevis
You can also follow me via our Life With MS Facebook page, on Twitter, and in our group on MS Connection.org. Also, check out our bi-monthly MS blog for the United Kingdom, look for our very special new monthly blog for the National MS Society, and don?t forget to check out TrevisLGleason.com.
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